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The Boy in the Moon: A Father's Search for His Disabled Son
Walker Brown was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps 300 people around the world also live with it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, canâ€™t speak and needs to wear special cuffs on his arms so that he canâ€™t continually hit himself. â€œSometimes watching...
Walker Brown was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps 300 people around the world also live with it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, canâ€™t speak and needs to wear special cuffs on his arms so that he canâ€™t continually hit himself. â€œSometimes watching him,â€ Brown writes, â€œis like looking at the man in the moon â€“ but you know there is actually no man there. But if Walker is so insubstantial, why does he feel so important? What is he trying to show me?â€In a book that owes its beginnings to Brownâ€™s original Globe and Mail series, he sets out to answer that question, a journey that takes him into deeply touching and troubling territory. â€œAll I really want to know is what goes on inside his off-shaped head,â€ he writes, â€œBut every time I ask, he somehow persuades me to look into my own.â€
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